Thursday, February 25, 2016
We CAN Handle the Truth: The Facts on Alzheimer’s
Journalist and Alzheimer’s disease advocate Maria Shriver shares her
takeaways from the WebMD and Shriver Report Snapshot: Insight into Alzheimer’s Attitudes and
Behaviors.
By Maria Shriver
Special to WebMD Health News
“Denial is the worst form of the truth.”
During the time it takes for you to read this piece, try to put your denial
impulse aside and take a hard look at the truth about Alzheimer’s. Because the fear that causes you to deny
things – like our risk of getting this mind-blowing disease – can actually be the motivator you need to stop
ignoring the facts and join me in doing something about it.
So here’s the truth: Our brand new WebMD and Shriver Report
Snapshot: Insight into
Alzheimer’s Attitudes and Behaviors, reveals that almost
all of us (96%) have heard of Alzheimer’s disease … so we can no longer deny that it exists. Nearly 4 in
5 of us know, or have known, someone that has been diagnosed with it, which tells us that the vast
majority of us not only know about it, they actually have experience with someone who has had or is
living with Alzheimer’s.
But even with all of that first-hand experience, we aren’t doing much about
it. Although 67% of people say they would actually like to know their risk for getting Alzheimer’s disease,
when offered a list of ways to do that, more than 1 in 4 say they wouldn’t do any of them. Although two-thirds
acknowledge that an Alzheimer’s diagnosis would cause their family great financial harm, nearly half say they
have never considered the financial implications if they, or someone in their family, were to get the
disease.
We know the risks and the reality, but we are in denial and unprepared as a
nation to deal with it.
Why are Americans choosing to turn off and tune out when the risk-filled,
pocket-emptying truth is right in front of us? Because denial is a protective mechanism. It keeps you safe
until you are ready to handle the truth.
I have been fighting on the frontlines of Alzheimer’s since my own father was
diagnosed with the disease in 2003. I get denial. Like millions of others I first denied what was happening to
him. Then, I got scared. But after that, I got busy. Fighting this disease gave me the drive to push through my
fear and land in a place of hope.
What am I hopeful about? I am hopeful about the exciting research that is
happening in labs across the globe. Some of the world’s best and brightest are looking for a cure every day,
some even say they’re getting closer – as the new cover of Time magazine implies.
But until a “miracle” drug is found, let’s not deny that someone in this
country gets Alzheimer’s every 67 seconds. Let’s not refuse to act because there is no cure. There is no cure
for cancer and still there are millions of people fighting it every single day. We need to fight the fear our
denial is protecting us from and find the hope. Hope will allow us to accept the truth – that as many as 16
million people could have this disease by 2050 – and act on it.
I am hopeful that people now understand the connection between cardiovascular
health and brain health. I am hopeful about the cutting-edge research that is showing a relationship between
the foods we eat and their impact on our brain. I am hopeful that people are getting the message that our
brains and our bodies are connected and what is good for our bodies is also good for our brains.
I am hopeful about companies like WebMD, Equinox, Vimmia and so many more, that are joining us in
this fight. The truth is that getting educated, getting empowered and getting engaged is the way to stop the
fear and find the hope.
I am hopeful that children of Boomers who might suspect that their parents are
struggling with memory will get them to a doctor earlier because they are now more aware of what Alzheimer’s is
and isn’t. If you’re wondering what the early signs are, just this week, the Alzheimer’s Association listed them for
you. The fact is, every day 10,000 Baby Boomers turn 65. The time
you waste denying that someone you love might have Alzheimer’s is time wasted getting them into a clinical
trial or getting a new drug that could slow its progression. When I speak to anyone connected to this
disease, one of the biggest regrets they have is the time they spent in denial. There’s so much shame around
Alzheimer’s but the truth is you can sit down and have a conversation with your spouse, your parents, your
loved ones about what they would want to do if Alzheimer’s showed up at your door today. Those who plan do
better.
I am excited about talking to Lauren and Seth Rogen for my
Architects of Change Live series – a series that profiles individuals from all walks of life who challenge what
is. Seth and Lauren have done just that. They created Hilarity for
Charity, they are shining a light on caregivers, raising money and
asking young people on college campuses to get involved and think about prevention so they can help their
parents and grandparents.
And I’m hopeful that women – the economic engine of this country – will join
me in this fight because the vast majority of people diagnosed with Alzheimer’s are women. In fact, as
The Shriver Report first reported, a
woman in her early 60s is twice as likely to develop Alzheimer’s as she is breast cancer over the remainder of
her life. Which is why I am excited about the mobilization of women through The Women’s Alzheimer’s Challenge – we’re raising
money to fund research on women’s brains to get the answer. And we won’t stop until we do.
In fact, I am excited about ALL of the people who are engaged in this fight –
spouses, children, political leaders. I am thrilled that the federal government just increased the amount of
money devoted exclusively to Alzheimer’s research. It’s still not enough.
In an election cycle where it seems like we have nothing in common, one thing
we all DO have in common is that we all have brains. And I haven’t met a person who isn’t terrified of losing
theirs. So let’s brainstorm.
They say the truth can set you free. The truth about what Alzheimer’s is and
isn’t and what we can and cannot do can set us free as a nation. I have faith in our country, and I know we can
handle the truth and be brave enough to use our fear to propel us into action.
The best way to break through denial is to challenge it. We have the facts, we
have the figures. And we have the fight. Let’s go and face it together.
To read more about the WebMD and Shriver Report Snapshot: Insight into
Alzheimer’s Attitudes and Behaviors go here.
source: http://blogs.webmd.com/breaking-news/